Friday, July 20, 2012
"Celebrating 2yrs remission!" , "I'm Cured!" .
If only. Lately I've been reading on-line of some great news from fellow survivors and patients. Some have gone into complete remission celebrating five or more years which is just awesome. Then there are others who are celebrating a year of remission.
This is were the thought comes for this current blog post. You see, I have yet to hit a year in remission since 2006 when I was first diagnosed. Twice, I almost made it. went from January to December only to find out I'd relapsed!
Currently I am in Watch and Wait and thus this has been the first time that I have gone more than a year without some sort of treatment, chemotherapy, radiation, bone marrow transplant...etc. Let me tell you, it's a celebration in itself not to have gone straight to treatment upon confirmation of my diagnosis in early 2011. Even though I almost made the decision to go ahead and start treatment right away, I decided to give Watch & Wait a chance. A chance I'm glad I took, because of my side effects and weakness I really don't know how that would have turned out.
So to look back on it all, and to look at those that are celebrating their well deserved remissions and cures, I've decided that I will take a moment to celebrate as well! Even though it's not quite two years of Watch & Wait, I have made it past the one year mark without treatment, and really missed the mark on celebrating that moment back in January.
I celebrate now! I celebrate life and the wonderful accomplishment of going more than one year without any form of treatment.
So to sum things up here, what is a reason to celebrate? Well, you don't really need a reason, all you need is the energy and the spirit to celebrate life. To celebrate your life daily, this is it, there's no going back, there's no re-takes. This is life and this is what you get. So celebrate it on a daily basis and make the most of each day.
Today I celebrate life without treatment, I celebrate life in general, and I celebrate with all those who celebrate with me!
CELEBRATE!
Saturday, July 7, 2012
C/T results, check-up, and just too hot!
Had my follow up appointment with my Medical Oncologist yesterday morning (July,6/12) and over all things went well. When she entered the examining room she had my C/T results in hand and went over them with me.
It appears that things have progressed a bit since the last C/T, but over all the nodes are still relatively small. Seems more of them are now showing up in the C/T which is matching up with what my PET scan back in Feb,2010 showed. The four nodes in the abdomen are now visible, the two nodes in the mediastinum area are still the largest of them.
She has noted something "new" that we will be keeping an eye on and that is there a a few "spots" showing up in my lungs that were not there on the last scan. I will be doing a chest x-ray in October before my next visit with her to re-evaluate at that time.
I showed her the two "new" nodes that have come to the surface and are now palpable. One is just below my right earlobe in the temple area, this one is actually quite sore to the touch as well. The other is also on the right side and in the upper right chest area just by the collar bone. This one seems to have just "popped" up in the past week.

Over all she thinks things are "progressing" as the should, and along with the tiredness all the time and weight loss, there is a feeling this may or may not be the beginning of something bigger going on. At this time she doesn't feel that it is, and thus the follow up with chest x-ray to check on the lung "spots" and blood work up, just to make sure nothing "more" is going on.
I told her I had mixed feelings about what was going to be discussed at this visit and even mentioned that if it were time to start discussions about treatment, I would put it off for a couple months as I did not feel I wanted to make those decisions at this time of year and would like to enjoy the rest of the summer before doing so. Well, I now know these decisions are not needing to be made at this time, which was a relief.

So, time to get back to summer and hope it cools off soon so we can get out more to some of the local events. There are a lot of events around the anniversary of the War of 1812 all over the area, and Brenda being a member of the Provincial Marines and their 1812 re-enactment group, she too would like to take part in more events. The temps being in the high 90's and into the 100's some days, it's just too hot.
I also have some other issues going on right now with the employer / union situation and will be focused on that for now. So will update as things move along and keep you all abreast of things medically and otherwise, take care and enjoy life!
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| Image only, NOT my scan. |
She has noted something "new" that we will be keeping an eye on and that is there a a few "spots" showing up in my lungs that were not there on the last scan. I will be doing a chest x-ray in October before my next visit with her to re-evaluate at that time.
I showed her the two "new" nodes that have come to the surface and are now palpable. One is just below my right earlobe in the temple area, this one is actually quite sore to the touch as well. The other is also on the right side and in the upper right chest area just by the collar bone. This one seems to have just "popped" up in the past week.

Over all she thinks things are "progressing" as the should, and along with the tiredness all the time and weight loss, there is a feeling this may or may not be the beginning of something bigger going on. At this time she doesn't feel that it is, and thus the follow up with chest x-ray to check on the lung "spots" and blood work up, just to make sure nothing "more" is going on.
I told her I had mixed feelings about what was going to be discussed at this visit and even mentioned that if it were time to start discussions about treatment, I would put it off for a couple months as I did not feel I wanted to make those decisions at this time of year and would like to enjoy the rest of the summer before doing so. Well, I now know these decisions are not needing to be made at this time, which was a relief.
So, time to get back to summer and hope it cools off soon so we can get out more to some of the local events. There are a lot of events around the anniversary of the War of 1812 all over the area, and Brenda being a member of the Provincial Marines and their 1812 re-enactment group, she too would like to take part in more events. The temps being in the high 90's and into the 100's some days, it's just too hot.
I also have some other issues going on right now with the employer / union situation and will be focused on that for now. So will update as things move along and keep you all abreast of things medically and otherwise, take care and enjoy life!
Monday, July 2, 2012
A Heartfelt Thank You.
We would like to take this time to thank those who so generously donated to the Fundraiser on Give Forward that my friend Kimberly organized for us, and has now ended. Without you and your generosity we would be facing a bleak future over the next few months. This will help us get by for those few months, while we can only hope that some progress is made with regard to my benefits being restored and Brenda finding gainful employment in a city with the highest unemployment rate in all of Canada.
So we would like to thank the following contributors;
Kimberly Eirdosh Caamano
Daryl & Alice Compton
The Anderluh Family
Rogerman
The Morris Family
Diane Rosenburg
Vic & Sandra
Anonymous
Mia Biltstien
Maria B. Baptista
Susie Long
Dora Waddy
Sharon Edwards
Nancy Best
Maria Zippilli
Patti Spino
Glenda Landskroner-Black
Sue & Larry
Martine Niddam
Steven Shatzkin
Diane, Tom & Shelby
Don & Irene Houser
Cindy Carney
Marie Ross

Thanks also goes out to all of you that took the time to share this fundraiser on your personal and group Facebook pages as well.
To a dear and selfless friend who I only know through Facebook and have never met in person, who took the time to think about the situation than Brenda and I are dealing with and set up this fundraiser.
Kimberly Eirdosh Caamano, YOU ROCK! Words can even begin to describe how we fell about what you have done for us. You don't know us from Adam and yet you took the time to put this together to help us out. It is my hope someday, somewhere or somehow we may meet up and I can thank you in person!
As far as I'm concerned you've earned plenty of feathers toward your angel wings with this selfless act of kindness.
Kim, we thank you, and all the rest of you as well. In the end you raised 31% of your goal for an on-line total of $3,093.00, there was also the mail in donations we received as well totalling $230.00 for an overall grand total of $3,323.00!! and you never know more could come and I will correct the grand total accordingly!
Tim & Brenda Mayer.
So we would like to thank the following contributors;
Kimberly Eirdosh Caamano
Daryl & Alice Compton
The Anderluh Family
Rogerman
The Morris Family
Diane Rosenburg
Vic & Sandra
Anonymous
Mia Biltstien
Maria B. Baptista
Susie Long
Dora Waddy
Sharon Edwards
Nancy Best
Maria Zippilli
Patti Spino
Glenda Landskroner-Black
Sue & Larry
Martine Niddam
Steven Shatzkin
Diane, Tom & Shelby
Don & Irene Houser
Cindy Carney
Marie Ross

Thanks also goes out to all of you that took the time to share this fundraiser on your personal and group Facebook pages as well.
To a dear and selfless friend who I only know through Facebook and have never met in person, who took the time to think about the situation than Brenda and I are dealing with and set up this fundraiser.
Kimberly Eirdosh Caamano, YOU ROCK! Words can even begin to describe how we fell about what you have done for us. You don't know us from Adam and yet you took the time to put this together to help us out. It is my hope someday, somewhere or somehow we may meet up and I can thank you in person!
As far as I'm concerned you've earned plenty of feathers toward your angel wings with this selfless act of kindness.
Kim, we thank you, and all the rest of you as well. In the end you raised 31% of your goal for an on-line total of $3,093.00, there was also the mail in donations we received as well totalling $230.00 for an overall grand total of $3,323.00!! and you never know more could come and I will correct the grand total accordingly!
Tim & Brenda Mayer.
Thursday, June 28, 2012
Fundraiser ends June 30th at midnight so Give Now and help Make a Difference!
Please find below a copy of the interview I did with CBC Windsor News in November of last Year. I am re copying it here for those who have not seen it or read it, as I am now in the last two days of a fundraiser my friend Kimberly Eirdosh Caamano from New Jersey started for me a while back. The fundraiser got off to a very quick start but then kind of petered out. So I am asking one final time that if you have not donated yet or are considering a donation, now would be the time to do it as the Fundraiser ends July 1st and we are a long way from the initial target. For those how have given and given generously I must say, I thank you from the bottom of my heart.
Please find below the "written" copy of my CBC story as well as video, and most of all the Link to the fundrasier, and don't forget to share where you can. Let's see how much further we can take this in the next 48 hours!!
Thank You,
Timothy J. Mayer
Man beats cancer four times in five years
Tim Mayer keeps spirits high, finds salvation on internet
Tim Mayer is beating some very bad odds. He has survived cancer not once, but four times in five years.
The link to the fundraiser on Give Forward: http://www.giveforward.com/helptimhammerlymphoma
A new report says the disease is now the leading cause of death in every Canadian province and territory. Latest statistics show it accounts for 30 per cent of all deaths here. It hasn't accounted for Mayer's even though he thought it would.
"You're going to die.That's the first thing that goes through your mind," he said. "And to this day, it still goes through your mind."
Mayer is still here despite a rough five years. He survived three forms of cancer four times; underwent a bone marrow transplant; and was denied experimental treatment he wanted to try in Michigan.
He celebrated each remission, every win. And then last year, when he thought he had finally won the war, his doctor called.
"It's never good when the doctor themselves call you. And she informed me that they found two nodes in my chest," he said from a chair in his Windsor home with two tumours still slowly growing in his lungs.
Life is not the same
Mayer said he feels like he just can't catch a break.
The Regional trucker can no longer work, although he thinks about it. He can no longer perform woodworking or camp — his two favourite pastimes. And his long-term disability insurance and possibly even his benefits run out in March, after five years.
"I try to live life as normal as possible," Mayer said.
The cancer, he said, has made him more caring, more willing to help people and accept help himself.
His story, although extreme, isn't unique.
According to the Canadian Cancer Society, 40 per cent of women and 45 per cent of men will get a cancer diagnosis in their lifetime.
Internet helps him cope
The trick, according to Mayer, is finding a way to cope. For him, the internet has been his salvation.
He blogs and uses social media to connect with other cancer patients who share his fears and reality.
But that also means he loses more friends than the average Facebook user.
"It's emotional; like losing a brother or a sister," he said. "And I've had times where I'm on the computer and I'll break down and my wife says, 'who now?'
Recent high-profile cancer deaths, like those of Apple's Steve Jobs and the NDP's Jack Layton didn't help.
Mayer says the slow growing cancer inside him is just part of his new reality. But he's not calling it quits.
"Death. It's there. And if you let it get you, it will, if you let it," Mayer said. "But you take your moment think about it and then you move on."
Friday, June 15, 2012
Scans, Summer and Relay
Finally, things are starting to settle down a bit and my case of shingle is slowly disappearing. Seems to be more sore and aggravating as it's healing that when I first contacted them.Now I've got a case of scanxiety as I await the results of both the Ultrasound I had on Tuesday to look at my right kidney area for a possible kidney stone. As for the C/T scan it was ordered by my medical oncologist Dr. Kanjeekal after my Dietitian Donna Danelon reported my weight loss which was rather rapid and out of character for me.
The way this all came about was that I was at the Cancer Centre for an appointment with my favorite social worker Nancy Hannon. I was in the lobby at the centre making myself a cup of coffee when my primary nurse Debbie came up behind me and gave me a poke, and said that I looked like was loosing a lot of weight. I told her I was not trying and that yes I did notice something was going on as I had to make a couple of new holes in my belt. She asked if anything unusual was going on, I said other than the shingles not really, I do have a loss of appetite.

I described it to her as best I could, and that is I just don't feel that hungry and that it's like I feel full all the time but haven't eaten anything to make me feel full, weird but that's how it's happening. I would say that at least 3 to 4 nights a week all I eat for dinner is a bowl of cereal and that seems to keep me full.
So between my dietitian and my primary nurse telling Dr. Kanjeekal about this she ordered a C/T to see if anything might be going on. I know something is going on as my stomach is always "gurgling" to the point I can hear it at times when I'm lying down. Not sure what that is about. I do take a lot of medications, however I do take a stomach pill to help that.
Now with the Ultrasound and the C/T out of the way the usual scanxiety has kicked in and I'm taking Ativan again to help with the stress and nerves. This node on my right jawline still seems to be getting bigger and bigger, my nurse had noted that to when she felt it there in the lobby, she said she would mention that to the doctor as well.

The waiting always seems to be the hardest part, the hospital is obviously understaffed with regard to radiologists. Taking up to two weeks most times to get scan results.Doctors obviously know that patients go through a lot of anxiety as we wait for results, so you'd think they would do something about that to get more radiologists in there to interpret the scans and write the reports. But with all the cutbacks in health care here in Ontario that is wishful thinking!
I am still waiting for a call with the appointment to see my oncologist to go over the scan results. I'm guessing nothing will turn up, and just can't figure that out as I'm sure something is going on in there. Time will tell.
This weekend is also the start to Summer-fest here in Windsor, and hoping to get out to a few of the events going on. The tall ships will be in Amherstburg and will pass through Windsor as well. The annual Target Fireworks on the river is on the 25th and we will watch from our balcony and avoid all the chaos of traffic and people downtown, it always packs in a million plus between the Detroit and Windsor waterfronts.
This could very well be our last fireworks as Detroit with it's financial woes is saying they can no longer cover the extra $700,000.00 for police coverage for the event. It will be a sad day indeed if that actually happens. Most are hopeful a corporate sponsor might come on board to help cover that cost. These fireworks have been an annual event ever since I can remember, right back to my early childhood.
I will wrap this up as it's Relay for Life day for us here in Windsor/Lasalle and Brenda and I will be attending as I will once again be taking part in the survivors lap which starts off the event. The also hold a survivors dinner so we will be out there for that as well. I'll be posting photo's from the Relay should I not forget to bring the camera! That wouldn't be a first.
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| Me, My Radiation Oncologist Dr. Schneider and Brenda Relay 2010 |
Take care and will update as it comes!
Monday, June 11, 2012
Update / Still time to Donate.
Well a there has been a few things that have been going on since my last post. The shingles the made their presence known on Wednesday May 30, continued for a week or so to get worse. Now with medication and rest, they are starting to recede/disappear which is good. The soreness and itching drives me nuts! Valtrex was the drug of choice to tackle it.
Two of our loved ones were put to rest this past week. They were both taken from us way too young! and have left behind families filled with grief and sorrow but also pleasant memories.. May they both rest in eternal peace.
I went for an ultrasound on my lower right back / kidney area, and stomach area. My doctor should have the results in his office in a week or so. Maybe this well tell what is going on with the pain I've been having in my lower right abdomen and lower right back/kidney area. Sure was uncomfortable as she did the right side as well even though I informed her I had shingles and they were visible, however none were "open". So I guess that might have been why there was no concern on her part.
Tomorrow I go for an unexpected C/T scan. Since my last visit to the Cancer Centre to see my social worker and dietitian and there was a considerable weight loss noted since my prior visit, my medical oncologist was contacted about it and immediately ordered a C/T scan which I will have done tomorrow morning. Then the scanxiety begins and even though I've been through this dozens of times in the past 6 years, it never gets any easier, if anything, it becomes worse mentally, with your mind playing all it's usual games with you.

This Friday will be the Windsor / Lasalle Relay for Life event at the Vollmer Complex in Lasalle. This will be my 4th year doing the survivors lap at the event. It's an event I look forward to participating in every year and one day hope to be able to put together my own team.
Last Tuesday Brenda and I attended the Roger Waters, THE WALL concert in Detroit at the Joe Louis Arena, Let's just say neither of us were disappointed, we were in awe at how much more crisp and colorful the images on the wall were, and there were some noted musical changes and mentions as well .
STILL TIME LEFT TO DONATE!
Also don't forget there is still time left to donate the the "Help Tim Hammer Lymphoma" fundraiser we are only at 26% of our goal amount and only weeks left to make that donation. Also looking for a group or corporate "Matching Donation Challenge" this is where you ask others to match your $500.00 donation and have fun competing at the same time while others match it! The link as at the top right corner of this page just click on the Orange "Give" button.
Please consider making a donation today!, no amount is too small!
Thank you,
Tim.
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| Kevin Malott 36 years old |
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| Jared McKnight 19 years old. |
Two of our loved ones were put to rest this past week. They were both taken from us way too young! and have left behind families filled with grief and sorrow but also pleasant memories.. May they both rest in eternal peace.
I went for an ultrasound on my lower right back / kidney area, and stomach area. My doctor should have the results in his office in a week or so. Maybe this well tell what is going on with the pain I've been having in my lower right abdomen and lower right back/kidney area. Sure was uncomfortable as she did the right side as well even though I informed her I had shingles and they were visible, however none were "open". So I guess that might have been why there was no concern on her part.
Tomorrow I go for an unexpected C/T scan. Since my last visit to the Cancer Centre to see my social worker and dietitian and there was a considerable weight loss noted since my prior visit, my medical oncologist was contacted about it and immediately ordered a C/T scan which I will have done tomorrow morning. Then the scanxiety begins and even though I've been through this dozens of times in the past 6 years, it never gets any easier, if anything, it becomes worse mentally, with your mind playing all it's usual games with you.
This Friday will be the Windsor / Lasalle Relay for Life event at the Vollmer Complex in Lasalle. This will be my 4th year doing the survivors lap at the event. It's an event I look forward to participating in every year and one day hope to be able to put together my own team.
Last Tuesday Brenda and I attended the Roger Waters, THE WALL concert in Detroit at the Joe Louis Arena, Let's just say neither of us were disappointed, we were in awe at how much more crisp and colorful the images on the wall were, and there were some noted musical changes and mentions as well .
STILL TIME LEFT TO DONATE!
Also don't forget there is still time left to donate the the "Help Tim Hammer Lymphoma" fundraiser we are only at 26% of our goal amount and only weeks left to make that donation. Also looking for a group or corporate "Matching Donation Challenge" this is where you ask others to match your $500.00 donation and have fun competing at the same time while others match it! The link as at the top right corner of this page just click on the Orange "Give" button.
Please consider making a donation today!, no amount is too small!
Thank you,
Tim.
Saturday, June 2, 2012
Tragedy and Death.
Been a terrible past few days, not only for my family but Brenda's family as well. On Thursday evening we got the news that my son Travis's (half) brother Jared McKnight was murdered in London Ontario. From eyewitness comments he was called over by a neighbor to the neighbors porch and was then stabbed in the chest by the guy. Jared's girlfriend was with him and witnessed the whole thing. No on should have to witness such a thing.
The suspected was seen and approached by police but ran and got away. He was eventually apprehended on Friday and is now in custody facing a 2nd degree murder charge. In my own opinion if the guy called him over and then just stabs him, I would think that was pre-meditated and thus he should be charged with 1st degree murder, but that's just my opinion.
This has affected the entire family but no one more so than my son Travis who was quite devastated by the news and still is.
Jared may have had his problems and issues but no one should ever have to die in such a manner. NO ONE!
I really don't know what this world is coming to. Why do fights have to be done with knifes and guns or with the intent to kill. Just a sad part of society that needs to change.
Friday mid morning we got a call from one of Brenda's uncle's with the news that Brenda's cousin Kevin was in the hospital in very critical condition from an accident. Things did not get any better for him throughout the night and unfortunately he has passed away.
You always hear the myth that these things go in three's. I sure hope this is not true. Two deaths in two days is a lot to bear as it is. Again our thoughts, prayers and our hearts go out to the McKnight family as well as the Malott family as they deal with their losses.
Life can be long or it can be short, and short by no fault of your own, so cherish every moment you have and enjoy and treat everyday as it's your last, the world would be a much better place if everyone lived by that mantra. A kinder, gentler world, is that not what we all really want. Please do your part and be kind to every person you meet, you don't know their situation is, and a simple hello or smile may change their entire day or outlook on life.
May Jared and Kevin both rest in eternal peace and soar above gracefully with those that have passed before them.
Click here for the article about Jared from the London Free Press.
This has affected the entire family but no one more so than my son Travis who was quite devastated by the news and still is.
Jared may have had his problems and issues but no one should ever have to die in such a manner. NO ONE!
I really don't know what this world is coming to. Why do fights have to be done with knifes and guns or with the intent to kill. Just a sad part of society that needs to change.
Friday mid morning we got a call from one of Brenda's uncle's with the news that Brenda's cousin Kevin was in the hospital in very critical condition from an accident. Things did not get any better for him throughout the night and unfortunately he has passed away.
You always hear the myth that these things go in three's. I sure hope this is not true. Two deaths in two days is a lot to bear as it is. Again our thoughts, prayers and our hearts go out to the McKnight family as well as the Malott family as they deal with their losses.
Life can be long or it can be short, and short by no fault of your own, so cherish every moment you have and enjoy and treat everyday as it's your last, the world would be a much better place if everyone lived by that mantra. A kinder, gentler world, is that not what we all really want. Please do your part and be kind to every person you meet, you don't know their situation is, and a simple hello or smile may change their entire day or outlook on life.
May Jared and Kevin both rest in eternal peace and soar above gracefully with those that have passed before them.
Click here for the article about Jared from the London Free Press.
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