Tuesday, August 31, 2010

September is Lymphoma Awareness Month


Well, it's that time of year again, I'm making the lime green ribbons to spread awareness about lymphoma's. Also started a challenge on my FB pages to spread the word of awareness.

It is estimated that 7500 new cases of non-Hodgkin lymphoma will be diagnosed in Canada in 2010.
About 74,030 people living in the United States will be diagnosed with lymphoma in 2010 (8,490 cases of Hodgkin lymphoma and 65,540 cases of NHL). The incidence of non-Hodgkin's lymphoma has doubled in recent decades; and no one knows why.

So, as you can see by the numbers, bringing awareness to lymphoma's is of the utmost importance. I feel that by sharing my story and doing what I can, is only a small step in a much bigger picture.

Interesting thing happened yesterday when I was at the cancer clinic for an appointment in the supportive care dept. I asked several people there (at the clinic and in the dept.) if they knew what this month was. Not one person could tell me!! I brought them up to speed in a hurry. So you can see why it's important for YOU! to spread the word about lymphoma's.

Make some lime green ribbons to spread awareness for non-Hodgkin's. Or do what you can, whatever it may be, to make someone aware of lymphoma this month.

You'll be amazed at how many people will ask about the ribbon when you wear one. If you don't wish to wear one all month, then be sure to wear one on September 15th which is world lymphoma awareness day!

Thursday, August 26, 2010

Ok, so more to today's update.

Went for my appointment with my radiation oncologist this afternoon. Seen a different Dr.( one that Dr. Schneider says he might just hire) he went over my scan results which were clean! No new growth, no new nodes, current nodes shrinking as they should. He also did the camera up the nose and down the throat thing and all looked good in there as well. He was really concerned with the amount of swelling, which I told him it had been that way for quite some time now. He is also changing my meds for the CIPN (neuropathy). Hopefully that works cause the neuropathy pain has been terrible lately. Dr. Schneider ended up dropping in to say hi at the end.
Also seen my dietitian today as well. Guess I'm up a kilo, I'll have to walk that off! Will see the Dr. again in a month as they want to monitor this med change. So I'll be weaning off of the Gabapentin for 2 weeks the starting the new stuff, Pregabalin. Ok, almost time for BB, so later!!

Latest news.

Sorry I've been a little behind on doing things with this page. Time now to start getting busy with it.
Well the move from hell is over now and the dust has settled and we are finally settled in at the new place. I have to tell you I love it!! Should have done this 10 yrs ago, who knew. Apartment living is great and the view, well it is priceless!

Been doing my daily walks at the mall, still loosing some weight, oz. by oz. lol. I have though had a really sore lower back lately and it seems to radiate up to my collarbone/neck area where it "tingles". Also this last week or so the neuropathy has really been raising hell with my left hand and foot. I will be mentioning all of this to my radiation oncologist when I see him today.

Brenda is doing absolutely fabulous with her weight loss journey, she is getting very close to goal weight and is looking great! I guess that is trouble for me, I'm sure there is a new wardrobe some where in all of this real soon! Ouch! We went to Ypsilanti Mi. a few weeks ago for Brenda's 1 yr. follow up which went very well. Dr. was happy with everything.

We also met up with one of my cancer friends on Facebook, Betsy de Parry in Ann Arbor Mi. We had lunch and chatted for a few hrs. Betsy also brought us a copy of her book The Roller Coaster Chronicles and even signed it for us! Betsy is just a great person who advocates for lymphoma's and treatments. She now has her own web cast on www.lymphomahelp.org/audio.htm. Going to figure out how to put the permanent link.

So that's it for now, will update again real so. Good vibes to all no matter where you are in your journey's .

We are still looking for a buyer for our trailer. Only been out a few times this season. I really has been neglected these past few years since I've been ill and really needs some TLC! We are really hoping to have it sold by the beginning of October and will entertain any reasonable offer! I have is posted on www.kijiji.ca/windsor under r.v.'s.