Thursday, June 28, 2012

Fundraiser ends June 30th at midnight so Give Now and help Make a Difference!


Please find below a copy of the interview I did with CBC Windsor News in November of last Year. I am re copying it here for those who have not seen it or read it, as I am now in the last two days of a fundraiser my friend Kimberly Eirdosh Caamano from New Jersey started for me a while back. The fundraiser got off to a very quick start but then kind of petered out. So I am asking one final time that if you have not donated yet or are considering a donation, now would be the time to do it as the Fundraiser ends July 1st and we are a long way from the initial target.  For those how have given and given generously I must say, I thank you from the bottom of my heart.

Please find below the "written" copy of my CBC story as well as video, and most of all the Link to the fundrasier, and don't forget to share where you can. Let's see how much further we can take this in the next 48 hours!!
Thank You,
Timothy J. Mayer

Man beats cancer four times in five years

Tim Mayer keeps spirits high, finds salvation on internet


Tim Mayer is beating some very bad odds. He has survived cancer not once, but four times in five years.


The link to the fundraiser on Give Forward: http://www.giveforward.com/helptimhammerlymphoma


A new report says the disease is now the leading cause of death in every Canadian province and territory. Latest statistics show it accounts for 30 per cent of all deaths here. It hasn't accounted for Mayer's even though he thought it would.
"You're going to die.That's the first thing that goes through your mind," he said. "And to this day, it still goes through your mind."
Mayer is still here despite a rough five years. He survived three forms of cancer four times; underwent a bone marrow transplant; and was denied experimental treatment he wanted to try in Michigan.
He celebrated each remission, every win. And then last year, when he thought he had finally won the war, his doctor called.
"It's never good when the doctor themselves call you. And she informed me that they found two nodes in my chest," he said from a chair in his Windsor home with two tumours still slowly growing in his lungs.

Life is not the same

Mayer said he feels like he just can't catch a break.
The Regional trucker can no longer work, although he thinks about it. He can no longer perform woodworking or camp — his two favourite pastimes. And his long-term disability insurance and possibly even his benefits run out in March, after five years.
"I try to live life as normal as possible," Mayer said.
The cancer, he said, has made him more caring, more willing to help people and accept help himself.
His story, although extreme, isn't unique.
According to the Canadian Cancer Society, 40 per cent of women and 45 per cent of men will get a cancer diagnosis in their lifetime.

Internet helps him cope

The trick, according to Mayer, is finding a way to cope. For him, the internet has been his salvation.
He blogs and uses social media to connect with other cancer patients who share his fears and reality.
But that also means he loses more friends than the average Facebook user.
"It's emotional; like losing a brother or a sister," he said. "And I've had times where I'm on the computer and I'll break down and my wife says, 'who now?'
Recent high-profile cancer deaths, like those of Apple's Steve Jobs and the NDP's Jack Layton didn't help.
Mayer says the slow growing cancer inside him is just part of his new reality. But he's not calling it quits.
"Death. It's there. And if you let it get you, it will, if you let it," Mayer said. "But you take your moment think about it and then you move on."

Friday, June 15, 2012

Scans, Summer and Relay

Finally, things are starting to settle down a bit and my case of shingle is slowly disappearing. Seems to be more sore and aggravating as it's healing that when I first contacted them.

Now I've got a case of scanxiety as I await the results of both the Ultrasound I had on Tuesday to look at my right kidney area for a possible kidney stone. As for the C/T scan it was ordered by my medical oncologist Dr. Kanjeekal after my Dietitian Donna Danelon reported my weight loss which was rather rapid and out of character for me.

The way this all came about was that I was at the Cancer Centre for an appointment with my favorite social worker Nancy Hannon. I was in the lobby at the centre making myself a cup of coffee when my primary nurse Debbie came up behind me and gave me a poke, and said that I looked like was loosing a lot of weight. I told her I was not trying and that yes I did notice something was going on as I had to make a couple of new holes in my belt. She asked if anything unusual was going on, I said other than the shingles not really, I do have a loss of appetite.

I described it to her as best I could, and that is I just don't feel that hungry and that it's like I feel full all the time but haven't eaten anything to make me feel full, weird but that's how it's happening. I would say that at least 3 to 4 nights a week all I eat for dinner is a bowl of cereal and that seems to keep me full.

So between my dietitian and my primary nurse telling Dr. Kanjeekal about this she ordered a C/T to see if anything might be going on. I know something is going on as my stomach is always "gurgling"  to the point I can hear it at times when I'm lying down. Not sure what that is about. I do take a lot of medications, however I do take a stomach pill to help that.

Now with the Ultrasound and the C/T out of the way the usual scanxiety has kicked in and  I'm taking Ativan again to help with the stress and nerves. This node on my right jawline still seems to be getting bigger and bigger, my nurse had noted that to when she felt it there in the lobby, she said she would mention that to the doctor as well.

The waiting always seems to be the hardest part, the hospital is obviously understaffed with regard to radiologists. Taking up to two weeks most times to get scan results.Doctors obviously know that patients go through a lot of anxiety as we wait for results, so you'd think they would do something about that to get more radiologists in there to interpret the scans and write the reports. But with all the cutbacks in health care here in Ontario that is wishful thinking!

I am still waiting for a call with the appointment to see my oncologist to go over the scan results. I'm guessing nothing will turn up, and just can't figure that out as I'm sure something is going on in there. Time will tell.

This weekend is also the start to Summer-fest here in Windsor, and hoping to get out to a few of the events going on. The tall ships will be in Amherstburg and will pass through Windsor as well. The annual Target Fireworks on the river is on the 25th and we will watch from our balcony and avoid all the chaos of traffic and people downtown, it always packs in a million plus between the Detroit and Windsor waterfronts.

This could very well be our last fireworks as Detroit with it's financial woes is saying they can no longer cover the extra $700,000.00 for police coverage for the event. It will be a sad day indeed if that actually happens. Most are hopeful a corporate sponsor might come on board to help cover that cost. These fireworks have been an annual event ever since I can remember, right back to my early childhood.

I will wrap this up as it's Relay for Life day for us here in Windsor/Lasalle and Brenda and I will be attending as I will once again be taking part in the survivors lap which starts off the event. The also hold a survivors dinner so we will be out there for that as well. I'll be posting photo's from the Relay should I not forget to bring the camera! That wouldn't be a first.
Me, My Radiation Oncologist Dr. Schneider and Brenda
Relay 2010

Take care and will update as it comes!


Monday, June 11, 2012

Update / Still time to Donate.

Well a there has been a few things that have been going on since my last post. The shingles the made their presence known on Wednesday May 30, continued for a week or so to get worse. Now with medication and rest, they are starting to recede/disappear which is good. The soreness and itching drives me nuts! Valtrex was the drug of choice to tackle it.


Kevin Malott
36 years old
Jared McKnight
19 years old.

Two of our loved ones were put to rest this past week. They were both taken from us way too young! and have left behind families filled with grief and sorrow but also pleasant memories.. May they both rest in eternal peace.




I went for an ultrasound on my lower right back / kidney area, and stomach area. My doctor should have the results in his office in a week or so. Maybe this well tell what is going on with the pain I've been having in my lower right abdomen and lower right back/kidney area. Sure was uncomfortable as she did the right side as well even though I informed her I had shingles and they were visible, however none were "open". So I guess that might have been why there was no concern on her part.

Tomorrow I go for an unexpected C/T scan. Since my last visit to the Cancer Centre to see my social worker and dietitian and there was a considerable weight loss noted since my prior visit, my medical oncologist was contacted about it and immediately ordered a C/T scan which I will have done tomorrow morning. Then the scanxiety begins and even though I've been through this dozens of times in the past 6 years, it never gets any easier, if anything, it becomes worse mentally, with your mind playing all it's usual games with you.



This Friday will be the Windsor / Lasalle  Relay for Life event at the Vollmer Complex in Lasalle. This will be my 4th year doing the survivors lap at the event. It's an event I look forward to participating in every year and one day hope to be able to put together my own team.


Last Tuesday Brenda and I attended the Roger Waters, THE WALL concert in Detroit at the Joe Louis Arena, Let's just say neither of us were disappointed, we were in awe at how much more crisp and colorful the images on the wall were, and there were some noted musical changes and mentions as well .




                                                STILL TIME LEFT TO DONATE!
Also don't forget there is still time left to donate the the "Help Tim Hammer Lymphoma" fundraiser we are only at 26% of our goal amount and only weeks left to make that donation. Also looking for a group or corporate "Matching Donation Challenge" this is where you ask others to match your $500.00 donation and have fun competing at the same time while others match it!  The link as at the top right corner of this page just click on the  Orange "Give" button. 

                        Please consider making a donation today!, no amount is too small!


Thank you, 
Tim.

Saturday, June 2, 2012

Tragedy and Death.

Been a terrible past few days, not only for my family but Brenda's family as well. On Thursday evening we got the news that my son Travis's (half) brother Jared McKnight was murdered in London Ontario. From eyewitness comments he was called over by a neighbor to the neighbors porch and was then stabbed in the chest by the guy. Jared's girlfriend was with him and witnessed the whole thing. No on should have to witness such a thing.

The suspected was seen and approached by police but ran and got away. He was eventually apprehended on Friday and is now in custody facing a 2nd degree murder charge. In my own opinion if the guy called him over and then just stabs him, I would think that was pre-meditated and thus he should be charged with 1st degree murder, but that's just my opinion.

This has affected the entire family but no one more so than my son Travis who was quite devastated by the news and still is.

Jared may have had his problems and issues but no one should ever have to die in such a manner. NO ONE!
I really don't know what this world is coming to. Why do fights have to be done with knifes and guns or with the intent to kill. Just a sad part of society that needs to change.

Friday mid morning we got a call from one of  Brenda's uncle's with the news that Brenda's cousin Kevin was in the hospital in very critical condition from an accident. Things did not get any better for him throughout the night and unfortunately  he has passed away.

You always hear the myth that these things go in three's. I sure hope this is not true. Two deaths in two days is  a lot to bear as it is. Again our thoughts, prayers and our hearts go out to the McKnight family as well as the Malott family as they deal with their losses.

Life can be long or it can be short, and short by no fault of your own, so cherish every moment you have and enjoy and treat everyday as it's your last, the world would be a much better place if everyone lived by that mantra. A kinder, gentler world, is that not what we all really want. Please do your part and be kind to every person you meet, you don't know their situation is, and a simple hello or smile may change their entire day or outlook on life.


May Jared and Kevin both  rest in eternal peace and soar above gracefully with those that have passed before them.



Click here for  the article about Jared from the London Free Press.

Thursday, May 31, 2012

What a Week!

Things started out good last week with a day spent at Caesar's trying to win one of the $500 every 20 minutes prizes, put in 8 hours their and no luck, no loss either cause for this contest all you had to do was swipe in with your players reward card and wait! But you did have to be there to win.
Just a massive amount of bikes at the
WFCU Centre where they began.

Had a good time this past Sunday volunteering at the 2012 Ride for Dad in support of Prostate Cancer. Brenda and I were set up out at the final stop of the Ride at the Ranta Marina in Amherstburg, ON. There were just over 800 bikes and riders registered this year, and I'd have to say at least a couple hundred "unregistered bikes took part as well.

The never ending parade of bikes
as they passed by our place.
We didn't have to be out at the Ranta until 2pm so I got to see them from my balcony as they passed by my building. I was quite a site, and it brought a tear to my eye, to see so many come out to support the cause, just awesome. After arriving at the Ranta, we got our volunteer shirts, however we were put on standby as all the jobs were currently filled.

So about 3pm we grabbed a bite to eat, and it was while we were eating that they found something for us to do which was great! We ended up directing the riders after they arrived to go to the blue over head canopies to have their poker cards validated before the went in the entertainment / dining tent. Everything went well, and the early tally of funds raised that day was just over $54,000.00. Nice job people!

So we move on to Monday and another shot at Caesars for $500 every twenty minutes. Again no luck, figured for sure they'd call my name as I had to leave for a couple hours to go to Spanish class over at the Hospice! But, no they did not call my name while I was gone either. My son Travis  and my good friends Rick & Bonnie were there too and listened for my name while I was gone. The did try to pull my leg about it, but I was on to them right away.

Then comes Tuesday and my appointment with my Palliative Care doctor. After going over how things were working with the new medications it was decided to up the dose of the pain killer he put me on by 3mg. So not so bad a day there, and everything appeared to go OK.


Wednesday, I had my appointment with my social worker and dietitian at the Cancer Centre and everything went well with my social worker, but not so much the same case with my dietitian. I filled her in on what was going on and how I felt about things and that there may have been some weight loss. Well, turns out there has indeed been some weight loss, just over 20lbs in a few weeks time. Like I told her, I feel like I'm full most of the time and most nights have just a bowl of cereal for dinner. She will be having a chat with my Oncologists about that.
Similar to what mine look like right now.

Maybe that is why there seems to be an increase in size of the lymphnodes and why new ones are popping up. I'm losing weight so they are showing up more and not really growing like it seems they were. Well if that were not enough, when I woke up Wednesday morning it felt like I had developed some kid of rash on my side. Once I took a look in the bathroom mirror I was 99% sure it was not a rash and was the dreaded shingles, not really a cancer patients friend. So I went straight to my family doctor after leaving the cancer centre and sure enough shingles it is! Now I'm on 1000mg of Valtrex 3 times daily to get it in check.

On other news, Brenda had finally gotten a call in the past couple weeks about a job interview. She went to the interview and passed it only to be told the positions had been filled and they would contact her next time they hire, and that she's first on the list. Not holding out on that and she's still actively seeking employment and putting in lots of resumes.

That's about it in a nut shell for now and will keep ya posted.

p.s. Don't forget the fundraiser, it closes July 1/12, you can donate by clicking on the GIVE button at the top right of this page. Thank You.

Wednesday, May 16, 2012

Five Month Check-up.

Today will be one of my regular check-ups with my Radiation Oncologist Dr. Schneider at the Windsor Regional Cancer Program. It's been 5 months since my last check-up and I'm feeling confident.

Me, Dr.Schneider and Brenda at Relay for Life 2010
Although the check-up visit today is for the Squamous Cell Carcinoma which was found in my throat just a couple of month prior to the DLBC being found, Dr. Schneider will give me the full look over. He treated me for that cancer which was my first, and then he also treated me for my fourth cancer which was the first diagnosis of the NLPH.

Although these follow-ups may seem at times to have become routine there is nothing routine about them. Let's face it your there to follow up on a cancer that could return at any time, although I don't worry too much about the SCC, I do worry about the current progression of the NLPH that I am dealing with now, which is my fifth cancer!

The Lymphnode  on my jawline.
Even knowing that I do have a current diagnosis and that I can judge by the node on my jawline, I still always ponder the question; when will it be time to pull the trigger and start treatment? Being in a state of watch & wait, knowing what your dealing with and what lies ahead for you, can be very stressful at times.

My treatment options for when the time comes are currently few, and there are a couple that my Medical Oncologist and I have discussed and have ready to go when the time is right. But that is it, when is the time right? She has told me the the ball is in my court and I can make the call to pull the trigger to start treatment at any time.

Watch & wait is difficult. You know you have a life threatening illness, you know it's progressing day by day, even though it may be indolent, and you have the power to start treatment at any time, but don't. I don't because I have discussed the situation with my oncologist in full. We have gone over the options, I have gotten a second opinion to be sure where we stand.

The situation is this with the Watch & Wait approach, we are waiting for things to progress a little further, to a point where I start to exhibit one or more of the "B" symptoms. That is when I am told it would be the best time to start treatment, as the outcome would be no different doing now than it would be doing it once the B symptoms start to appear.

So this is why I watch and wait, and also because I had just finished a period of time where I was pretty much in active treatment for four years, and totally wore out from it all. So rather than start treatment again so soon and run all those toxic drugs through my body again, which is only going to weaken me more and who knows how much more, a little? a lot? or even may just too much.

I'll continue to take my chances with the watch & wait approach, keep up with these regular check-ups, the next one of which, will be with Dr. Kanjeekal my Medical Oncologist, who I will see sometime in September. So between the two oncologists I see, I actually get a follow up approximately three months. I can also call in if I think there is something that pops up and I think is urgent or requires attention sooner.

So as you see even though these follow-ups can have the appearance and feel sometimes of being "routine", there is nothing routine about them. After all it's me and my life in their hands and mine. Nothing routine about wanting to live another day, week, month, year, or even years.

Tuesday, May 15, 2012

Correction note, Re; The Perfect Storm



Seems I was initially misinformed with regards to one of the statements I made in my last blog.

The situation with regards to having to "sell" my pre-paid funeral arrangements is false. In fact pre-paid funeral arrangements are considered an "exempt asset"  with regard to claiming assets which you may or may not have to "sell"

The "exempt asset" limit in our case would be $7.500.00. I have copied the actual statement with regard to assets and exempt assets directly from the Ontario Disability Supports program page and here it is;







"Examples of assets


Assets are property, possessions or money that belong to you or your family. Here are some examples:


cash
money you have in bank accounts
stocks and bonds
Registered Retirement Savings Plans (RRSP)
vehicles
property (for example, land or a house)
trust funds
any other assets that you or your family own.


Some assets are exempt


Some assets are "exempt" - this means they do not affect your eligibility for Income Support. Here are some examples of exempt assets:


the home you own and live in
your primary vehicle (the one you use the most, if you have more than one)
trust funds derived from an inheritance or life insurance policy, up to allowable limits
the cash surrender value of life insurance policies, up to allowable limits
pre-paid funerals
Registered Education Savings Plans (RESP)
Registered Disability Savings Plans (RDSP)
necessary household and personal items, such as furniture and clothing.
These are only a few examples. There are many rules about the treatment of assets while you are receiving Income Support.


Your Ontario Disability Support Program worker can help you figure out which of your assets are exempt. That's why it is important that you report all of your assets to your worker.


Asset limits


There are limits to the amount of non-exempt assets you can have and still remain eligible:


for a single person, the limit is $5,000
for a person with a spouse, the limit is $7,500
the limit increases by $500 for each child.
When you can go over the limit


In some cases, you can get approval to save money over and above your asset limit. For example, you may save money to buy an item or service that you need for your health or for your disability. Talk to your Ontario Disability Support Program worker."


The fact remains however that I believe that the step of having to apply for Ontario Disability Support via Ontario Works is a wasted step in the case of an obviously documented disability and is a was of Government money. Unnecessary wages and time for all those involved at Ontario Works.

Their case loads are overloaded now, and to add this "unnecessary" step is just more stress on them not to mention the wasteful spending on the Governments part.

My apologies for any inconvenience the misinformation may have caused.

Tim.